31 December 2018

We arrive at home this afternoon and I am exhausted, but happy to be here and equally scared, as I have no clue as to what lays ahead of us!

I take a 15 minute space mask rest – which promises miracles, intergalactic relaxation and the kind of space escape I am longing for – and then we will gently walk over to Simone’s for a cosy and quiet New Year’s Eve!

There are a lot of moments in 2018 I could have easily done without, reoccurrences and losses of friends and cancer buddies that devastated and scared me, sad times, illnesses and injuries and a lot of heartbreak, but I am grateful to be able to look back and say that it was an amazing year! My life is enriched with wonderful moments and amazing people! I have exceeded my own limitations, I am so much stronger and hopefully a better person, went out of my comfort zone and continued to change my life, my routines and habits….

I can be cool as a cucumber, when everyone is rushing around (and even though it drives some people mad, it feels right to me to do things in my own speed) and then I am back at juggling all tasks at once, but the direction is the right one and I definitely look more after myself and voice my needs.

And I want to do good and make a difference, continue to talk about cancer, break the tabu, engage myself in more charity work and motivate people to look after themselves. Have a wonderful 2019, you all and thank you for being there, for supporting and enriching my life! It has been a ball – most of the time – and I appreciate that you did not only go with me through the highs, but also through the lows! Onwards and upwards – I am ready to take off …. after some well deserved rest at my own pace in a mindful way spiked with more regular meditations than lately…. ❤️ look after yourself ❤️

Picture credit: Recover your Smile e.V.

30 December 2018

Still in hospital…. it only took them a full day to x-ray Mia and it will probably take them another one for the accident surgeons to talk to us 😉

Mia is in good hands though, gets regular medication after she was in a lot of pain yesterday and is quite jolly… she just cannot move and I have no instruction yet as to what she is allowed to do and therefore we are just laying around!

To add to my drama run, I lost a filling last night, but hopefully we can leave hospital today! Our New Years trip has been cancelled and we are just happy not to be in hospital for New Year’s Eve, but if we are…. oh whatever!

My brother sent a „Mia is in hospital“ book along with a Playmobil „Kid in hospital“ set…. and we are reading and she is allowed to watch Peppa pig – no rules in hospital 😉 Rene, who works here, Mum, Markus and Leo visited yesterday and that is as much distraction as we can handle right now!

29 December 2018

While Mia slept well, the cure little boy from Africa had severe coughing attacks last night and was put on oxygen and nurses would be in and out of the room….

This morning I double checked that he was not contagious and they confirmed that he was on antibiotics and all was fine. I informed them that I finished chemo a month ago and that my immun system is not up to speed.

While yesterday they said that we could not have a single room despite the extra insurance we have, as they did not have any, we were moved to a single room within the hour…. hmmm, apparently it only freed up this morning?!?!…. Well, even if we leave today, I did not mind, as the constant TV running and the snoring of the boy’s mum is something I can easily live without! I tried to explain it to her (the move due to the chemo – not the snoring 😉) and hope that they do not take it personally…

So far there are no updates, but there will be a few checks and then we can hopefully go home today. Mia is already bending the injured leg, but still in a little bit of pain. She is a tough cookie though and I am so proud of her…. I still would rather go through an extra ten chemos instead seeing her in pain!

Thank you for all your wonderful messages ❤️

28 December 2018

I can pretend as much as I like that I am ok, reality hits me hard after the Christmas days – I am exhausted, my body is tired and hurts and I feel empty…. I stay in bed most of the day and rest and cry, don’t even attempt to do the paperwork for rehab (thank goodness the insurance paperwork is complete and I handed it in on the 24th)…. And today I learn that the screws in my finger will be removed January 4th and the stitches end of January and then all shall be fine.

I have just left the hospital and had a coffee, when Markus calls me at lunchtime – Mia fell from a ladder and broke her thigh – I am just in time to catch the ambulance before she is rushed to hospital and my poor little girl is sooo brave. I am strong and brave too until she is rolled into the operating theater. I am so worried! I sit outside and wait and cry….

My kids are my world and I am so scared right now, try everything to distract myself and nothing works! Writing this does not help either ….

Just got the ok that all went fine and that we will stay for only one night. They will let me see her in 15 minutes and I cannot wait. My little baby ❤️

26 December 2018

On the 25th we have our traditional Christmas brunch with the extended family, my cousins from Frankfurt and Cologne are here and whoooo had the same idea to go to a restaurant?!? My childhood friend Lars and his family are sitting at the long table next to us – perfect!

I am full and tired, but happy, as we still go out at night after the kids are in bed – we all overeat… and fresh air is key, so there is another argument to go to Tröte – a pub I have been going to since my youth!

We are on our way home now, will spend the day in Essen with Markus‘ family and have a few to dos until the end of 2019.

After a good night’s sleep, I have the builders, a few appointments and need to face the rehab admin and paperwork tomorrow, as the information, where the rehab will be, arrived just before Christmas….

The clinic is in….. tatatattaaaaaa…. Todtmoos (and yes, I had the same look on my face 😳)….. I wanted to go to the seaside and this clinic is in the Black Forrest, next to the Swiss border and it seems that geographically you could not possibly be any further away from the sea….well, my initial reaction was to object, but I will probably not and still go, because:

– I wanted to go with Paula to St. Peter Ording and they are fully booked and there is no chance to go there, so that is no motivation

– I wanted to go to the seaside because I am a seaman and because I had pneumonia and feel my lungs could do with fresh sea air, but this clinic is specialized in pneumology and the air seems quite therapeutic in the black forrest

– the clinic has excellent reviews

– the black forrest covered in snow seems to be an attractive alternative, I have a few friends in the area and – shame on me – have never been there

– it reminds me of the Black Forrest Clinic – a TV series I loved as a child and in my head several soap opera scenes appear – that could be entertaining

Downturns:

– no Paula (but we arranged a bosom buddy reunion in Hamburg)

– no seaside

– an clinic’s image film only shows old people

– these old people are silk painting 🤦‍♀️ – my worst nightmare along with tongued owls and hand made dream catcher… but I guess that nobody can force me into any useless activities 😉

25 December 2018

It’s the enthusiastic angel in the kids‘ nativity play, who sings on top of her voice throwing her body into the syllable, while gesturing wildly, burning for her role – it let’s my heart melt! I sit there surrounded by loads of families, while the cousins sit happily on the floor next to the stable, where Pippi Longstockings‘ horse is representing the stable animals and little kids in oversized jackets are the shepards. I am glowing with joy – Christmas carols, the lights, the tree and all the children…. that is it – I am not a church person, but this is the spirit I love so much this time of the year!

I enjoy it so much to see my home town peeps, hopping between meeting friends and celebrating with the extended family, eat good food, drink – probably too much – and to see the Christmas magic through my kids‘ eyes, and yes, I even enjoyed building the LEGO police station with Leo last night …. warm temperatures and rain cannot stop my Christmas spirit…. never….It’s the time to be jolly…. I am living it up – offline – more champagne for me and happy Christmas to all!

22 December 2018

Two more sleeps – last preparations, last cookies are in the oven, just need to pack now (Story of my life 😉) and the rest of the cards will be written after Christmas! Tonight it’s party time and tomorrow we are going home to celebrate with the family – a bit digital detox & quietness are in line along with meeting my school and childhood friends, a nativity play, decorating the tree, eating and drinking! No worries, if there won’t be a post ever day – have a wonderful Christmas ❤️

21 December 2018

Three more sleeps…. and the magic is at risk due to warm weather and constant rain – but do I let anything spoil our Christmas joy?!? No way – instead of ice skating with me, the kids go swimming with Markus, while I play Christmas elf and wrap all their presents and write some cards…. I love it!

My last lymphdrainage for this year is in the books! Sparkle, glitter and have drink….it does not always have to be mulled wine – in these warm temperatures, champagne will do just fine 😉 I raise a glass and toast to 2018… it was an important, dramatic, sad, funny, horrible, lovely and inspiring year – an emotional roller coaster ride, but despite the fact that I could easily have done without cancer and would love to have skipped that part – I am thankful for all that came along with cancer…. not literally all, but the positive side effects! And now, I enjoy my break!

Did I mention that I love this time of the year?!?! It is the time about feelings, love, coziness, friends…. tell a friend how important your friendship is! Online peeps, I am so glad that we connected – you are my support group, my motivation and it means the world to me ❤️ and some online friends are also part of my amazing offline friends now! I am grateful beyond belief and happy to be alive and kicking, glittering, sparkling and dancing around the tree!

20 December 2018

Oh what a night with my cousin Sylvie…. an operetta – „Im weißen Rössl“ („the White Horse Inn“) by Ralph Benatzky – light entertainment one could say…. but what a blast! The costumes, the sceneries, the ideas… they really make the most out of the possibilities and sometimes just simple tricks would do the magic – I cannot stop laughing!

During the interval, we have some wine, don’t want it to end…. the magic in Staatenhaus is catching and you can see the fun the singers have…. it is bright, gay, colorful, funny, Austrian and wonderful – an alpine idyll with the mountain backdrop and a cable car and we are in the middle of it being in the second row. It is exaggerated and over the top in such a clever, bright and funny way with knitted beards, confetti, wigs, the funniest accessories, the male ballet, fog machines, the woman hunter with horns and a beard, coloured beards, cow costumes with three tits, plastic costumes, rollerblades, fury moonboots…. I could go on and on! If you have a chance – go and see it either in December or January…. What a blast! Our Austrian hearts jump with joy! Thank you, Oper Köln!

I feel alive – I am paying the price today, but we even have drinks after the show in the Alte Wartesaal and it feels so normal!!

Paperwork is piling up, my bank account is screaming, but I am living and I love life! Early night tonight and tomorrow, as it is Markus turn to go out for the next two nights – and I need it!