17 February 2018

Bali – finally!! I have been waiting for this since October…. it was my goal after chemo! I never knew, if I would be fit enough to go, if I would actually go, but it kept me going…. I have been to many countries working on the ships and being a happy traveller, but Bali is somewhere I have never been.

„Just one person?“ The driver is sweet, but makes me cry right away! I have travelled my times by myself….Maybe I am overly tired, but I cannot stop crying and talking about my cancer I cry even more…. poor chap… it is a bit too much for him, but I cannot help it and half way to Canggu I am ok again 😉

The place is even better than on AirBnB and I have two beers on the terrace outside my little hut and love it, while I catch up with family & friends. There is a little river purling next to me and I am embedded in a little chirring jungle – what a peaceful place.

I have a restless sleep, wake up early and I am not happy – what is wrong with me?!? After breakfast and mediation on my little patio, I go to the beach…. it looked a bit closer on the map, but I make it and watch the surfers…. maybe I can try it? Have not done it since 2004 in Costa Rica! After 2pm the sea shall be calmer, as it’s low tide and until then I relax a bit in the Old Man’s bar on the sofas and go online to speak with the kids a few times (poor Leo has a fever & vomited 😢), chat with Nick and read…. yep – I can read again …. whooohoooo – and recharge my batteries!

I am happy, despite the fact that I should stay out of the sun post chemo and because I am super pale, which limits the possibilities a bit…. actually a lot, but I try to make the best out of it and give myself credit for having already avoided the lunchtime sun … and the surf guys promise to give me extra sun blog 😎 It is 2pm it gets a bit cloudy – thank heaven for that – and off I go! Two tries, I don’t get beyond kneeling and have no energy left 😂…. but at least I tried! The clouds stay and I am thankful, as I can stay on the beach now, get a massage, read, watch the sunset with a beer and a spicy corn on the cob and only have to run, when it starts raining….what a perfect day!

I met this Australian guy two nights ago, who lives in Singapore and has been many times to Bali …. he suddenly had this glow in his eyes talking about Ubud, the rice fields and the calm and magic this place holds – I am certain that this was the best choice to go there next. Healing, cleansing, recovering – bring it on 😉 I will have the full enchilada, but first I have one more night in Canguu at Suparna’s place, before I meet Silke tomorrow and we make our way to Ubud🙏

Healthy tan? No… orange sun block 😂…. last time I looked like that it was Karneval 🎉

16 February 2018

Hera arrived late last night, but we went for a beer at the waterfront, chatted forever and saw the New Years fireworks!

The view from the 19th floor is amazing, I meditate with the rising sun in my face and spend the morning at the pool chatting away – pure bliss! The funny thing with no hair is though that I still stike it …. or rather nothing….out of my face after diving …. every time 😉

Being at the pool, I wear no make-up and look ill, but am so happy to have waterproof eyebrows…. it makes such a difference!

After a quick lunch, I need to dash to the airport….. next stop Bali 🙏

15 February 2018

Smooth travels for the handicapped 😉 I get an electric car to the gate – the last time I had the pleasure was in Dubai, when we were so late for our flight (I mixed up the time) that they drove us with one of these cars in order to have a chance at all to make it with two kids and a buggy – and since Leo wanted the ride one the minute he first saw one, it kind of taught him the wrong lesson, but he probably forgot by now 😉

I treat myself to a little massage prior to boarding and the gate is empty when I get back, but all is good! As I go past the upper classes, I am a bit jaleous, as I could do with a proper bed, but being super tired, I will probably dose off 😴 a cheeky wee wine helps – just half a glass!

I pre-ordered an Indian vegetarian – thanks Suse for the tip – and it is one of the best airline meals I ever had…. and I had quite few! I will try to eat no sweets from now on…but they serve Häagen-Dazs icecream 😜 …. I ate a lot of sugar lately and now with no chemo, this does not feel right. I have the urge for sour wine gum, but really this is not about sugar and Bali will help me to calm down and rest and somehow eliminate the use of sugar as a power device 😉

Being escorted in Singapore is fabulous, but why do I have to sit in a wheelchair?!? Well, whatever – smooth ride to the taxi and off I go to the Mandarin Oriental, where Hera is staying …. problem, she will only arrive in five hours. No problem for me – I find the restrooms and get scared. This face looking back from the mirrow is an old man and I really want my eyelashes back now, but it is not only that I want my power back and my eyebrows and I did shave my head again before my flight and it is finally time for even hair growth and I want my body back (though the Physio lady said I was less fat now 😉) and my face is still blown up ….. ok, that does not help! I clean myself up, put a dress on, paint what is left of my toe nails and hit the road.

The Chinese New Year Festival is just on the opposite side of the road along the waterfront and I am fit enough for a scroll while the sun is setting and it is amazingly beautiful! I sit for ages at the waterfront, breath the warm air – it reminds me of my time at sea – and I realize that I have not been to Singapore forever! I have dinner at a rooftop bar and a virgin mojito, as it starts to rain again, but there is music and I am happy that I can be here! Happy Chinese New Year!

14 February 2018

Today, it is packing day 🤦‍♀️ …. I have the whole day though! I am an expert in procrastination though…. I go to physio, do a moderate training with the running Mamas, have coffee with Mona, chat with Nick and do whatever I can do to distract myself from packing 😉

I do close my backpack one minute before I have to pick up Leo from Kindergarten and spend a wonderful last afternoon with my kids. They are adorable and Markus made a little book with them containing pictures and drawings and I am crying my eyes out! I absorb every minute and am now sitting on the train to Frankfurt….. next stop Singapore!

13 February 2018

Is is a crisp and sunny day… and I don’t know how to manage it all…. but somehow it will fall into place. Leo is at home today, Markus is off, but has to work a bit, Mum is on her way and I need to calm down…. I should close my eyes, breath and enjoy the beautiful day, but my head is spinning.

I asked for assistance from Singapore Airlines for long distances at the airport and I really hope that they send one of these electric cars and not a wheelchair, but don’t fancy standing in a queue in the heat in Singapore after the flight… whatever it is, I have to live with it.

Emotionally I am at my lowest and start crying, every time I tell the kids that I will be away for two weeks ….. I miss them already!

I have been crying a lot this morning, I am so fragile today, but it is time to dry up the tears, go to physio and to the doctors.

The energy I have left, I would love to use for my kids, but there are these things I have to do and I have to pack…. this is the worst about feeling this weak and I look forward to being myself again!!

To add to my turmoil, the insurance company did send me another letter, which I have to sign and return to confirm that I know that they are not paying the sick benefits, as they do not agree with me going abroad and that if this trip delays my well being, they will cancel the benefits all together. Thanks! What if it helps me to recover faster?!?!

I do call them though to say that there are a bit more moderate ways to treat someone, who is freshly out of chemo and they might consider that in the future…. surely they won’t.

I get the confirmation that I am fit to fly and the medication and no, I cannot use the leave days from work, while on sick leave …. I will leave it as it is, go and not worry about it! I don’t have the energy anymore and it is only money! At least my treatments are being paid for 😉

And above all – I should not loose the focus of what is important – the tumor shrank, I am alive, my aches and pains are relatively minor compared to what can possibly happen and I can go to Bali!!!

I just need to pack….. 🙄 No going out tonight!

12 February 2018

All kids and I are asleep by 9pm – Leo and Janis actually share a bed and the love between all these cousins is amazingly beautiful …. we are all completely exhausted from the day though. I wake up at 11pm to the worst nightmare I had in ages…. And it takes forever to fall back asleep – Chemo brain at it’s best performance I guess …. but I chat, text and Maja even calls…. It is sad that I sleep, while it is Karneval, but I am so tired and I started coughing during the night and it scares me!

Today is our traditional ‚open house‘ Monday, which I have been doing for more than ten years. Everyone is invited, brings something, we eat & drink & go to the big parade …. it used to be a bunch of friends, but meanwhile the kids outnumber the adults 😉 I love it!

It is a wonderful event with loads of people, sunshine and laughter and I still have the energy to join them at the parade for a little while …. – surprisingly it snows when we get home. Funny weather!

I shaved my head for the occasion, but I hope it will be the last time… I just feel that there are still little bald patches on top of my head 🙄 …nevermind.

Tomorrow I still have admin work to do. Singapore Airlines advised me to better get a letter from my doctor that I am fit to travel, I still have to talk to my company and doctor about the holidays, which I might use and I did not even think about packing…. I think I should also get some antibiotics, just in case my chest gets worse…. Thank god my Mum will arrive tomorrow to support me a bit – and if there is a wee bit of energy left in my body, I will go and burn the Nubbel tomorrow night. A lot of pubs have a mansize doll hanging above the entrance during the Karneval days – the Nubbel – and it is burned on the last evening of Karneval along with all the sins…. traveling all clean to Bali 😉

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Amazing family resemblance 😉

11 February 2018

I am sooo exhausted, but it was actually Markus, who went out and I was in bed early 😉…. yet, I take it easy today after getting up with the kids! No need to be ill again and Karneval with all the crowds and everyone kissing each other, is the worst time of the year anyway!

It is Karneval parade in Niehl today and since Nina & Stefan live en route, they invited a few people for a pre parade soup & drinks get together… just my thing and having a place, where you can use the loo and warm up or rest in between is priceless…. Dress up, make-up, off we go!

During Karneval, chemo looks are actually really handy… no worries about make-up in the hair line or any hairline at all …. no worries about hair not fitting under my wig, no need to hide eyebrows 😜

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10 February 2018

I was so upset yesterday, disappointed, tired, hurt and all the hassle with the insurance company, who on top of all decided to send me a registered letter to confirm that they are cancelling all support, while I am out of Germany. I am fine though – I am honestly beyond caring, but this was not what I needed after chemo. The next bomb that exploded was the news that my company will be taken over by Amex, which will be interesting …..I clean myself up and what a difference a bit of make-up can make 😉

I join Sylvie in the Oellig pub – I love Karneval …. but I take it easy, do not sing too loud to save my lungs, have no alcohol and leave early! I will meet my friend Hera next week in Singapore and who do I bump into on the street?!? Three of her kids ❤️ I have not seen them for ages and am thrilled!

Today my brother and his kids are arriving from Munich and we might go to one of the smaller parades in our hood, but we will take it easy. Karneval celebrations are lasting until Tuesday night and it is the best time of the year and I am happy I can join in a little bit!

I should probably start thinking about what to pack for my trip, but then again…. I probably don’t need much anyway 😉

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9 February 2018

Post chemo recap:

  • hair, shaved, but regrowth noticeable (down on back of hands!?!?), but still nothing to shave on the rest of my body
  • lashes – second set almost all gone again
  • eyebrows – second set almost all gone again too
  • skin – super dry inside and out
  • weight – total gain of 7kg!! Feel extremely fat and uncomfortable in my skin, but the Indonesian cuisine will help
  • water retention – I hope it is not all fat, but water as well that causes my face and body to be blown up like this…
  • bones – hurt a bit, but hopefully a bit of light yoga and warm weather will help
  • fingertips – numb, but it can only get better
  • lungs – a bit short breath, but no coughing – only a mild cold and this is probably due to the dry sinuses
  • nerves – raw… I have no patience, am very thin skinned and easily upset and anxious and super emotional – looking forward to more meditation in Bali
  • brain – foggy … guess I am on the highest concentration of chemo poison now
  • perspective – brilliant …. onwards and upwards from here now, as there are no more chemos lined up

I guess I need to change my diet now, as the comfort blanket of chemo is slowly disappearing and there is still a bit of tumor left…. In a way it is not only the routine that is missing, but having the poison every week, gives you comfort that you are ‚doing‘ something to fight the beast…. until the radiation, there will be enough chemo poison left to make sure any tumor cell left will not have a chance to grow now…. That is my idea of dealing with it now anyway.

Yes, chemo is over, but that does not mean I am back to normal…. and I do not appreciate anyone telling me that it is. Six months is apparently needed to recover from chemo and this is not only concerning the obvious damages visible from the outside, as my hair will grow quickly. I thought about it last night, as I had hot flashes…. yes, this is now ‚artificial‘ menopause, as chemo killed my fertility, but this will continue for the next five years, as the anti-hormone therapy has the same effects… great outlook. And it is probably joined with weight gain again… oh joy 😉

What will help? Carnival therapy – I might dress up and join Sylvie and the crowds for a little while! 🤡 … give me an hour and I will be home again, but hopefully in a better mood 😉

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The naked truth post 16 chemos….

8 February 2018

Why do these things always come at once!?!?

My mental state is weak – one day post chemo – yet, I have to urge to get issues out of the way, tell people how I feel and when they hurt me. I have accepted that I am vulnerable, when I talk about my feelings, but I do not have to pretend that I am all strong.

It is freezing, but sunny and I ride to my beautician appointment, do some grocery shopping and notice that the first the crocuses are appearing…. reminds me of my hair slowly coming back… I might stop shaving now that chemo is over 😉

After I come home, I am exhausted and just need some rest, as I did not sleep until 2.00am, but my insurance company (AOK NordWest) calls me twice (bad communication on their side) to tell me that I will not get my sick pay and no household aid, if I leave the country. I am very thin skinned today and actually cannot help myself, but cry on the phone and do not appreciate that they put me through this twice. The point that really upsets me, is the fact that I have survived five months of chemo with two little kids at home and I am in a very weak state right now and yet I have to fight here. My doctors say that I should do what is best for me and to travel to Bali is my way of regaining strength for the operation and radiotherapy. I went to sea for nine year and travel is something that really does not stress me. I have organized to get help on the way and therefore I do not see what difference it makes, if I travel within Germany or leave the country, but this is Germany and there are rules and regulations. I do not consider this a holiday…. anyhow, I clean myself up and mobilize my last energy to find alternatives. I am accumulating leave days at work, while I am ill, maybe there is a win win solution from that end, as one of the breasties suggested?!?! I am checking with HRG and my doctor. And concerning the household aid, I will contract them myself during this time. I have managed so much, I will not let the insurance company spoil this last minute. Bali I am on my way! No matter how…. This is emotional stress that I really don’t need right now.

I cannot rest now anyway and there has been enough crying for today …. It is carnival and I put some makeup on and go and celebrate with my kids – very low key though at a Nina’s house 😉