19 April 2018

I ride my bike through the little streets off Turiner Straße, where the radiology center is. There is a huge construction site and I have problems finding the back entrance, but make it just on time. It is early in the morning, but the air is warm, the sun is bright and I am ready to get sewing patterns drawn all over me… I am laying on my back ready to whoosh into the CT scanner, the upper part of my body is naked and a nice doctor covers me up with my t-Shirt. It does not even feel weird anymore to lay somewhere naked…. the amount of people, who look at my boobs, touch them, scan them and talk about them is increadible and in a way, it has become something like having your feet measured…. absolutely normal!

Then everyone is there and despite feeling normal just a minute ago, I suddenly feel like a piece of meat. A roast, which is being prepared to be shoved in the oven…. I slide into the CT scanner, out and two women draw lines and crosses on my torso. It is actually not too bad, as my tumor area is apparently easily spotted and they tape the lines with plasters to prevent that they wash off too easily! I feel a bit like a crash test dummy, but what bothers me more is the fact that the therapy will end 11 June – no QM2 and no Berlin?!? Dr. Ricke sees me again and adjusts the appointments due to all the public holidays and the therapy suddenly ends 8 June and it works around the Berlin trip …. whooohoooo! Thank you!

I find the ideal bike route, have a coffee at Simone’s and another one at Maja’s to book our train ticket!!! Can’t wait! Berlin, Berlin, we are going to Berlin 🎶🎵

In the meantime, the revision department from my health insurance has declined my appeal against the cutting of the household aid, while I was recovering in Bali…. the comment is „unreasonable“. Well, do whatever you want. I find it sad that the bureaucracy is this narrow minded and that they pay for my household aid, when in rehab, but not when recovering in Bali, which was probably much more efficient than any rehab, but with no cost for them…. anyhow, it is not worthwhile to loose any sleep over it.

Off I go to talk about colonoscopy in hospital and am sitting in St. Vinzenz Hospital in the dark endoscopy department waiting for my appointment. But it won’t be long …. I hope…. and this afternoon the kids and I can try the new inflatable splash pool, which I bought today – hello summer 😎

18 April 2018

Summer is here and it feels like the ‚good old times‘ in Frankfurt! Anne and I know each other from the Lufthansa’s flight attendant training days in 1994 – back then there were no kids and endless talks with coffee and cigarettes…. today was just like that, as the kids stayed at their father Karsten’s place …. but no cigarettes 😀 It’s these friendships that are effortlessly comfortable, where you never think you have to do something, can let your hair down (if you have any 😉) and feel at home. Anne is one of my best friends and Mias godmother. Fun fact: she lived in Ealing (London) year before I went to uni there and there are so many fun memories I share with her!

There is not much film shooting left to do for DKMS LIFE today and I can meet Anne for a quick brunch at Café Crumble before I jump on my train home to Cologne. I am happy that I could support DKMS LIFE and it was fun, happy that I could see Anne and happy that I can go home now to see my kids after kindergarten!

17 April 2018

DKMS LIFE runs the German „Look good feel better“ programme organizing make-up seminars for cancer patients. It does not matter, if you just got your diagnosis, are in the middle of treatment or already in remission – they want to put a smile on our face and there are many companies supporting them with make-up products, which you can take home in a goodie bag. DKMS LIFE are completely financed by donations and yes, the seminars are complimentary ….you learn how to handle chemo skin, draw eyebrows, if you no longer have any and colour eyes without eyelashes – it makes any cancer patient feel good and the patients leaving the seminar glow inside out! Pale faces suddenly brighten up through make-up and confidence!

I am happy to support this wonderful organisation and I am helping to shoot a training video for their make-up artists, who voluntarily run these seminars all over the country! Check out the DKMS LIFE homepage for seminars and if you want to donate, this is money well invested!

It is a fun day, we will finish tomorrow and until then, I will spend some quality time with my friend Anne!

16 April 2018

The sunshine wakes me up and my mood brightens as the beams hit my face. I feel much better and enjoy the early morning with my kids. Mia wants to cuddle all the time and clings to my leg…. my kids – like all kids – have very fine senses and feel when I need extra love ❤️

The elevator takes me to the 12th floor in the building next to Haus LebensWert. There are windows on each side of the room overlooking Cologne – what a beautiful setting for music therapy. Today is apparently the ‚large‘ circle meeting of appr. 14 people, which takes place once a month, while the ’small‘ circle meets weekly. We warm up humming different tones and loosening our tongues and jaws before we pair up. I pair up with the therapist Norbert Herrmanns, close my eyes and follow his humming around the room…. it actually focuses me on my hearing while I am in a cocoon of humming sounds and it is an amazing feeling of warmth and homeliness. There is a roof terrace outside the room and we all go outside to sing with Norbert Herrmanns taking the guitar with him. We are singing „we are sailing“ and tears start running down my cheeks…. it is a joyful crying in this beautiful setting with the wind blowing through my short hair and the sun warming the air. I am thinking about my time at sea, karaoke in the Golden Lion Pub onboard the QE2, MiniMe and I singing together, as I love singing, but would never sing alone, would blush and try to get away. Today, I don’t care what the others think, what I sound like …. I enjoy it so much and sing at the top of my voice! A final song combines movement and singing and I cannot wait until next week. We don’t introduce each other and I have no idea, who the others are, but the group has a good feel about it and Norbert Herrmanns plays a major role. He has a very strong voice being an opera singer and I really look forward to next Monday 🎶 …. let’s see who is part of the ‚inner‘ circle 😉

I enjoy the high, while having a coffee and a croissant – yep, that is ok, as I started the day with a green smoothie bowl – in the sun outside Café Petit Noir and run some errands before seeing psycho oncologist Dr. Multhaupt! I feel stronger than ever…. just a little cold, but much better!

To complete my feel well experience, I am at the Barber’s …. drinks offered: coke, coffee and water 🙄, but it was a great experience, the guys were fab and I wasn’t even charged, as he said that he hardly did anything…. well, without a beard and without long hair, there is not much to do, I guess, but having clean contours means the world to me. I do smell a bit like a bearded guy now, but I am sure that wears off soon and the other mothers at the playground do not complain 😉 Thank you, Al Barbier Nassr!

15 April 2018

I sleep only a few hours and lay awake having bad mom thoughts running through my mind. It rains heavily and I do not manage to stop my mind, which runs like a hamster in a wheel….I feel guilty for not spending the afternoon with my kids, as I will hardly be home next week. I am beyond tired, think I have a cold, start coughing again and have pneumonia flashbacks, my breast is still not healing properly and I am angry with myself for being light tempered last night. Any little task I have to do overwhelmes me just thinking about it…. I am nine weeks post chemo, but I guess I have to give myself more time to recover!

Therefore I meditate, get up and spend time with my kids and after my first coffee the world looks already so much friendlier. It actually stops raining and as the first rays of sunshine break through the clouds, my mood brightens equally 😉

My energy level is close to zero, but the kids want to go swimming. I would go, but check with my doctor (on a Sunday with a What’s App boobie picture – she simply is the best), am not allowed and drag myself through to lunchtime just being present…. I ask them not to go without me, as I cannot stand not being with them right now!

Today is the first time we have friends over since my diagnosis …. my cousin Sylvie, Maja and their families come over for a BBQ. I had a busy social life throughout my therapy, but somehow I was not able to cope with having people over. Maybe home became my little sick place, my castle, my refuge?! I don’t know…, maybe it was just easier to leave at any point when I am somewhere else instead of kicking my guests out 😉

I try to sit back and relax and let my guests and Markus do everything, but am knackered beyond believe. My heart explodes with joy though seeing this bunch of wonderful people. The kids love each other and do cooking competitions! Tomorrow is my first day of music therapy and I am really excited. I will be asleep in no time and hope I will be ok again 😴

14 April 2018

It is warm and sunny and busy…. Yes, I do too much, but the weather is so beautiful and I feel that I am full of energy.

I am very proud to say that I managed to get an appointment at a very cool barber shop! The bearded guys and their bearded clients looked slightly puzzled when I enter, but it is no issue and I will see them on Monday….in the late afternoon – just in case they will offer me a drink 😉

Anna, who I know from my first meeting at DKMS LIFE (who organise the look good feel better cosmetic workshops for cancer patients), organised a get together with five breasties and it was great to chat with them! The exchange amongst cancer patients is always special, as we can best relate to each other – thank you for organizing this meeting, Anna!

I have little energy left, but meet my family and friends at Fink for a nice open air dinner! Carola, the owner, actually sports the same hairstyle I have – by choice though – and it is nice to see her again!

I am beyond tired, completely exhausted and simply fall into bed when we finally reach home. Just two quick bedtime stories and my energy is gone. I look forward to having more energy one day to manage a whole day plus an evening, but for now, I am happy for what I have. I will catch up on some sleep, as I have been awake with Mia since 6.00am, and try not to do anything for the rest of the weekend apart from barbecuing…. of rather eating and socializing on my terrace 😉

13 April 2018

I quickly get some passport pictures done today, as the City of Cologne wants some up-to-date ones for my handicapped ID, which was apparently granted in February. I look at the pictures thinking that I look quite normal again.

Normal? What is normal?!? My world is upside down, I do things differently, think differently and generally care less what is normal and if I am normal or not. I am definitely not the standard normal right now, but I feel good and love my blossoming hair, lashes and eyebrows – I am a short hair fan now…. ok, a little bit more density and length will cover my scalp quite nicely, but it is ok as it is!

I think that I could do with a little trim around the edges and ears by now though…. is that a hair dresser’s job??? No, I think I want to use the opportunity and go to a barber for the first and last time in my life…. I might as well take advantage of the situation and I always wanted to know what it is like to visit a barber, since the shops look so nice and according to my brother, it is quite an experience and my friend Nick says he even get’s whiskey there?!?! Not that I like whiskey, but hey… if I am lucky, my hairdresser offers me a coffee 😉 Let’s see if they turn me away, but since I have seen kids in there, you obviously don’t necessarily need a beard?!?!?…. I will try it this weekend!

I feel much better today, tidy the flat, go to lymph drainage and manage the entire afternoon with Leo, music school, ice cream and a quick visit to a very nice birthday party at Steffy’s, who I have know for years now! We don’t see each other a lot since she left the running mamas, but every time we do, I really enjoy it and we have the same interior design taste 😉.

12 April 2018

I am in bed… I am exhausted, my throat hurts, I have no energy…. Throw back Thursday at it’s best… I realize that the last time I felt like this was past chemo…. WOW! It has really been a while! I have been busy lately, but for now, I have cancelled everything until this afternoon, am staying in bed and will try to sleep now. Fingers crossed that this is not the flu!! Over and out 😉

PS: did you see my lashes?!?!? There are tons growing back now 😍

11 April 2018

Getting up I am tired beyond believe!! My mood today follows the weather – rainy in the morning and sunshine in the evening. I have not been to the running Mamas for a while, but make an effort and join them 30 min late. This week is a plank challenge in which I cannot participate anyway 😉, but the social aspect is certainly a motivator though. Coffee with the girls and lunch with Maja and Sandra brighten my day a bit!

I am late for sports due to my fatigue and a call from the music therapist. I can start the therapy on Monday and what he explains sounds very promising – I really look forward to it 🤗

I notice that people look at me more these days…. why?!? I have hair now and in my terms it is loads of hair!! Well, it was not really warm for the past seven months and I used to wear a hat or beanie while being outside, which made me blend in quite nicely. I would take it off as soon as I entered a building, but with this warm weather nowadays I no longer need a beanie to keep me warm…. do I care though?!?!? Not really…. and I always speak to the people straight away, if they keep staring, which normally helps both of us 😉

It ties in quite nicely that Michael and I visit a vernissage tonight „Schönlinge – Auf der Suche nach der Schönheit der Verletzlichkeit“ ….this exhibition is aimed to raise awareness for Alopecia Areata (an autoimmune illness, which is often considered ‚cosmetic‘ as you ‚only‘ loose some or all of your hair). Lisa Haalk, the beautiful and charming initiator of this project, has been living with alopecia since she was 11 years old and asked her friend Ingrid Hagenhenrich to take her pictures…. The idea was born and 2015 they started this amazing project with 27 alopecia beauties, 27 photo shootings, 1 traveling exhibition. It is an inspiring evening and I see great photographies, incredible people and have tears in my eyes, when one of them describes what being part of this project meant to her.

Yes, I lost every single hair on my body, but I always knew that it was only temporary and it was amazing to see all these photographies of these beautiful women shining despite being hairless for years! The exhibition is in Cologne until May 25.

10 April 2018

When I first received my diagnosis, I approached it in the same way I manage projects at work – make a project plan, timelines and set up a good filing system. An accordion file folder is my way to stay on top of all the paperwork. The is a slot for insurance, nutrition, courses, psychology, radiation, diagnosis, invoices, hospital, chemo, etc. and the folder is almost bursting after more than six months, but considering the amount of administrative work one has to cope with, it really helps to have a project manager’s approach and key is a digital calendar …. physio, podology, make appointments for colonoscopy and a heart echo, I should also check out my music therapy, should complete the TCM questionnaire, should organise the taxi transfers contract for radiation, which the insurance company has granted, etc etc …. and there is our household and social life, which needs organizing, but I am ready for all and in a much better mood today after a meditation with Leo and the perspective to have lunch with Maja ❤️

Apart from the necessary administration, there is some work, which I actually enjoy and which helps my intention to raise awareness and support others. I am supporting DKMSlife and will have a first project with them next week. Additionally, I have been invited to a blogger workshop on April 21 and just received the agenda today! Not only are the topics quite interesting, but it will be nice to exchange information with fellow bloggers, which I will also be doing on the 22nd, when I am attending the Blogger4Charity event in Düsseldorf! There are interesting times ahead, a lot of cancer and charity publicity and I will certainly write about it!

My energy level is quite high today, I organise whatever I can while having a quiet coffee at Café Eichhörnchen and I am fit enough to look after the kids a bit more, which I enjoy a lot! I also try to think about my therapy in baby steps again! Radiation first: the start is now being moved to 26 April. I speak to Dr. Ricke and she says that the recommended window for radiation is 4-8 weeks post operation and with 7 weeks, we are still alright! 28 days of radiation, five days a week, bring me right to 4 June….. There are tons of public holidays in May – do they radiate on public holidays?!?! Maja and I wanted to go to Berlin on the 4th of June …. fingers crossed 😉